BLOG & ‘BRAVERY BOTTLES’

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WELCOME TO MY BLOG!

I hope it gives you an insight into what day-to-day life with multiple chronic illnesses is like, provides you with a better understanding of the medical conditions I live with, and helps to raise awareness of these 'rare' diseases; the key to finding a cure

My diagnoses are: Ehlers Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (PoTS), Mast Cell Activation Disorder (MCAD), GI Dysmotility & Chronic Urinary Retention.

As part of the management for these conditions I have a Tracheostomy, a GJ tube, a Central line (currently a PICC line), and a Suprapubic catheter.

Other projects:

MAIN BLOG - Life through my Eyes
Bravery Bottles
Teddies with Trachs

Social media:

Don't forget to follow my blog on Facebook and Instagram to be kept up-to-date on any updates/changes!

*As the main page of the blog and central part of the project, ‘Life through my eyes’ incorporates the blog itself, as well as Bravery Bottles, Katie's Care Kits and Teddies with Trachs, and updates/announcements on all 4 parts of the project will fall under 'Life through my eyes' on social media, the shop, donation pages etc.

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Hospitals that have already received Care Kits:

Darent Valley Hospital - Dartford

Kent & Canterbury Hospital - Canterbury

Royal Sussex County Hospital - Brighton